Connor’s Cure has third annual fundraiser
Connor Thompkins is like most 3-year-old boys in that he’s vibrant, curious, active and smart. He likes to goof off with his older brother, Jackson.
Staying still for a photo is a challenge.
But Connor has cystic fibrosis, a progressive, genetic disease that causes persistent lung infections and limits breathing ability over time. It means Connor swallows 50 pills a day while undergoing lung therapy and fighting infections and other symptoms. Just last week, he spent three days in Children’s Hospital while tackling an infection.
This time last year, Connor’s parents and a large support team were hopeful about securing a medication that patients, parents, doctors and researchers described as miraculous. Fortunately, this year Connor has the opportunity to take this life-changing medication as part of a clinical trial through Seattle Children’s Hospital and Vertex Laboratories.
This progress is supported by the nearly 90 percent of donations that go directly to the Cystic Fibrosis Foundation.
It is a decision made by his parents, Colin and Laura Thompkins, former Edmonds residents and Edmonds-Woodway High School graduates who now live in Kirkland. Connor and his brother frequently spend the day with their grandmother, Edmonds physician Judith Babcock, who lives in a quiet Westgate neighborhood.
Starting next week, merchants in Edmonds will once again be showing their support for Connor and fighting cystic fibrosis. They will be making donations from sales and holding fundraisers in support of the Connor’s Cure Finders team for the annual CFF Great Strides event in May, an annual walkathon with events nationwide and locally in Seattle.
“We are deeply grateful for the support of over 30 local merchants and the generosity in the greater Edmonds community supporting our efforts in fundraising,” said Laura Hamilton, a friend of Babcock’s who lives in Edmonds and solicits contributions.
“I’ve known Judith for a long time,” Hamilton said, “and am so happy to help. We’re all so humbled for merchants’ support. Because of that devotion, Connor’s Cure Finders was the highest fund-raising Great Strides team in Washington state. We hope to hold onto that first-place honor. Connor and those with cystic fibrosis are adding tomorrows to their lives because of community involvement and support.”
To learn more about Cystic Fibrosis, go to www.cff.org.
2017 activities to support Connor
Brunch and auction: 11 a.m.-2 p.m. April 23 at Girardi’s Osteria. Tickets are $35 for adults and $15 for children under 12. Reservations made by contacting Laura Thompkins at firstname.lastname@example.org. Edmonds businesses are contributing many offerings for the silent auction.
Glazed and Amazed: Thursday, May 4. A percentage of the day’s sales are donated to Connor’s Cure Finders.
Twist Yoga: A benefit class is 9:30-10:45 a.m. May 6.
Edmonds Garden Market: May 6, Connor’s Cure Finders booth, face-painting, donations.
The Cheesemonger’s Table: May 6, donating 30 percent of all profits that day to Connor’s Cure Finders
C'est la Vie: Fashion show the evening of May 25. Tickets will be sold at the auction and will also be available by contacting one of the team. Fifteen percent of any purchases that evening will support Connor’s Cure Finders
Arista Wine Cellars: Wine tasting 6-8 p.m. June 22. Tickets will be sold at the auction and through the team.
Great Strides Walk: May 21, start at the Seattle Center. Go to http://on.cff.org/2pL8Umr for more information.